Showing posts with label susan g. komen for the cure. Show all posts
Showing posts with label susan g. komen for the cure. Show all posts

14 September 2008

SUCCESS in the CITY


the day has come and gone, and it has been incredibly inspiring and memorable ... the 2008 susan g. komen race for the cure is an amazing success! and in no small part thanks to your love, support, and effort!

although the weather is menacing in the forecasts, it is a gorgeous, sunny 90 degrees in central park today! 28,000 walkers and runners descend to be a part of this incredible community, eager to eradicate breast cancer once and for all - a sea of pink and white t-shirts, worn by men, women, and children of every imaginable background!

our day starts off early, in the ann taylor survivor café, a temporary pavilion set up in the middle of the park. we are greeted enthusiastically by dara richardson-heron MD, the CEO of the organization in new york, and the other key players who organize this event on all of our behalves. most of team jane's journey is on hand at this early hour, as is rabbi adler from our synagogue. special guests include my parents, sarah and arnie, who fly in stealthily without us knowing last night, to surprise our family - fantastic!!!

i am introduced to jayne jamison, the publisher of seventeen magazine, who is receiving the survivor award - congratulations! also on hand are cynthia nixon (sex and the city), deanna favre (wife of NY jets quarterback brett favre), and petra nemcova (supermodel). i am called upon by deanna, and receive a lovely introduction. i am attaching a copy of my preprared statement that i deliver to the crowd on hand (who cheer heartily - both embarrassing and thrilling!).

i am whisked away in a golf cart with deanna immediately following the presentation, to the race start location ... where i am introduced to maurice dubois, the CBS anchor, and am reintroduced to 'judge judy' (who is with at kas and sasha's wedding a few weeks ago!). stephen colbert of the colbert report is also there - funny!!!

finally, the rest of the team catches up with me, and off we go ... unbelievable! the park, the city, taken over by a huge group of people with a common cause!

an update - i am amongst the TOP TEN fundraisers for this event in new york this year - all thanks to you! the total stands at $14,267 - which can go even further as the final date for donations is 31 cctober 2008. the team has raised over $22,000 - making us one of the top teams (but not quite top ten yet - we'll get there!).

in addition to my remarks, I am happy to include a link to our pictures - hope you can visit! check it out by going to:
www.swedlerkomen.shutterfly.com

with much love and appreciation, harley
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from today's presentation:

dear friends:

one year ago, i find myself in rwanda, a volunteer architect designing a village for children orphaned by the 1994 genocide. rather than being filled with dread and despair, it is clear to me that the survivors of that horrific event carry hope, joy, and optimism with them. frantically busy during the day, i return to the comfort of my hotel in the evening, fascinated by the people that soldier on against all odds.

miles away from home, i sit diligently with my laptop, meticulously documenting what i am seeing, experiencing, feeling. strangely, in the heart of east africa, fatigued and perplexed, i find my voice in a daily blog. it evolves into my true and positive snapshot of life flourishing under the most adverse circumstances.

and so it goes with our family’s experience with breast cancer. i cannot possibly project how my first visit to rwanda will prepare me for events to follow. prior to my second scheduled trip, my wife jane is diagnosed. fear and panic set in immediately, and subside just as quickly. as both a physician and a patient, she decisively selects a path to follow. as she sets out to research, discuss, and weigh options for her treatment, i return to my trusty keyboard and starting tapping away. from the first day of jane’s journey, i know that all is not lost, that there is hope.

five days on, living with a new reality, i tell jane that i've started another blog. horrified, she protests vehemently, and despite enjoying my postings from the hills of kigali, she does not, most certainly not, relish the prospect of having her life become an open virtual book. i persevere, promising that post surgery and chemo, we will be able to keep our huge and global network of friends well informed of her progress. at a minimum, it means less phone calls to return. she finally, and wisely, relents.

through daily manifestos ushered out via cyberspace, i draw on the positive energy around us, and relegate negative moments to temporary insanity. as numerous physical indignities are heaped upon jane, i humorously notate the absurdity of the day’s events in trite rhyme, melancholic prose, skippy limericks ... all complimented by a bastion of whacky vignettes.

i humbly stand before you this morning, honored to receive the susan g. komen co-survivor award. i gratefully accept this distinction on behalf of all those who move forward graciously despite tremendous hardships. whether it be halfway around the world, or here in central park, i am thrilled to know that in some small way, my take on a difficult situation has touched, and possibly sustained others.

many thanks, and bravo!

12 July 2008

city living


finally, gorgeous weather in new york! warm, sunny days, lovely evenings - so uplifting. chalk it up to climate change, global warming, or sheer madness - but we don't follow those same old weather patterns we used to. back in the day, if it was sunny in the morning, it was pretty much a given that the afternoon would mirror that. now it could be torrential downpours, full sun, hot and humid, and a nippy evening ... go figure.

and happily, we seem to be done with those unbearably stifling and humid july days which made it impossible to function with any reason. jane and i take advantage - after her zometa infusion yesterday at the hospital, we enjoy an late afternoon and evening in manhattan.

the zometa infusion, really a fifteen minute cocktail, acts as both a bone-strengthening remedy as well as a helper in the fight to reduce risk of cancer occurrence. jane is a perfect candidate for this bi-annual treatment, which has no visible or substantial known side effects (at least in her case). when i ask her if it's weird or depressing to again sit in the same chair and place where her chemo was administered, she says that it's not - although there are negative connotations associated with the side effects (fatigue, hair loss, and many more), we actually made very 'nice' use of our team when jane was receiving her treatments. watching dvd's, drinking seltzer, snacking on pretzels, etc. - and being together, looking forward to a lunch at grand lux. so all in all, an easy and quick remedy yesterday.

we venture into the city, traffic free - poor slobs on the way out east to the hamptons, like ants crawling towards their hill. we are effortlessly in the city, everyone milling about on their way out for the weekend, or gathering with friends for cocktails on terraces and rooftops.

we rendezvous with the new CEO (local NY affiliate) of susan g. komen for the cure at a hipster hangout on ninth avenue. we are introduced to dara through hala, the national president and CEO of this amazing organization. we have a lovely chat, and learn a great deal about breast cancer advocacy, local programs, the race for the cure (14 september - mark your calendars!) ... dara is inspiring and energetic, and we're sure that she will help push the ball further in the fight for breast cancer eradication. jane and i are eager to become involved and aid in this fight, with jane's particular interest in outreach to teens - educating adolescents about the disease, making them aware of it's ramifications, and helping them to cope with a diagnosis of a mother, sister, etc..

we venture up the west side, past the grittiness of tenth avenue and hell's kitchen (wow, there still is a REAL new york - who knew!) and join henry & ali for an israeli inspired, mediterranean themed dinner at taboon ... very hip, but not overly self conscious, we regale each other with stories about our kids, travel, work, building, weddings, africa, et al. we slyly tease them that we are all the same age now - reading glasses, menu flashlights, despite what the calendar says. we don't particularly like this idea of not being able to read a menu without yanking two or three accoutrements from jane's handbag!

a lovely friday afternoon - missing the kids but knowing that they're barefoot and happy in their lord of the flies camp environment ... next weekend we see them - yeah!